Having a bit of an existential crisis today about my disability, because of how varied my day to day experience can be. Asking for this was hard. The fact that it didn’t surprise my doctor and he thought it was a good idea was somehow…harder?
#ChronicPain #NEISvoid #hypermobility
An example of the thoughtless or insensitive comments people with chronic illnesses can sometimes hear
From a blog post by an Irish woman with ME who has become a published writer
https://solongasicanbreathe.wordpress.com/2025/04/14/walking-ambling-stumbling/
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
@chronicillness
@spoonies
@disability
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME
FYI for anyone curious about using #cannabis for pain. Most of the studies seem to be on using it for #ChronicPain, but those suggest it works best when there's a roughly equal amount of THC and CBD in the dose.
Start with a dose of 5mg of both. Increase after a week if needed.
(I'm not a doctor. I'm just relaying results of my reading.)
I feel like the whole world used my joints as an accordion last night. I wish I could say that was a post saucy feeling, but sadly it is not.
There are few effective treatments for many types of #chronicpain. This writer knows, having tried them all. So he writes about it. And it helps ease the pain. It might seem farfetched, but scientific research has demonstrated that writing can reduce symptoms of stress, anxiety and mental anguish in general, and because chronic pain has a significant mental component, writing can help ease physical pain, too. By Randall H. Duckett
My body pain is rather curious. I'm not sure how long it's been going on at this constant level, but I think far shorter than the time I've been diagnosed with fibromyalgia or ME/CFS.
No matter how much I stretch, take hot showers, or use heating pads to leech the pain away, it doesn't reduce even slightly. It's like I'm trying to escape my body, but the skin refuses.
And the much-vaunted "just exercise to get healthier" is as unattainable as anything I can imagine.
Relatable?
@chronicillness
@spoonies
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
#ChronicIllnessMemes
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid @fibromyalgia
#Fibromyalgia #Fibro #FMS #FM
Today is one of those weird #Fibromyalgia moments that health advisor who /don't/ have #ChronicPain don't realise or think about.
We're often told to do exercise, something physical, because inertia can make the pain worse.
While all those are accurate enough... moving, doing physical tasks and exercise, make the pain worse. And no, there's no after-exercise drop in pain levels either.
Sure, one is "healthier" than the other.
But Fibro=Pain, no matter what you do.
So...we cope. Kinda.
a nurse practitioner whose research at Toronto's Hospital for Sick Children is dedicated to helping children and teens manage pain has won a prestigious Gairdner Award:
"We set out to make our ‘invisible illness’ visible in South Africa with SICK Pride"
Image is from April 2025 AMMES Newsletter
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC @chronicillness
@spoonies
@disability
@disabilityjustice
#chronicillness
#chroniclife
#ChronicPain
#Spoonielife
#hiddenillness
#invisibleillness
#ChronicIllnesses
#Spoonies
#Spoonie
#ChronicallyIll
The combination of a broken foot, bad pollen allergy and having had a root canal is really getting to me. So tired.
But I have work that has to be done today, so as soon as my pain killers start working I need to start on that
My #psoriaticarthritis is , however, not as bad as it could be
#chronicillness #chronicpain #pollenallergy
Doctors appointment yesterday and too much walking = #ExtremePain today, tomorrow, & however many days of #PEM-PostExertionalMalaise hits me this time 
#WeNeedTreatmentsAndCuresNotFundingCutsAndCruelty
#Fibromyalgia
#LongCovid
#ChronicPain
RE: https://bsky.app/profile/did:plc:dbzmdmsaz6lkhb4tv3culzme/post/3lmfzb7bstk2h
I have, temporarily, had to stop wearing bras.
The amount of pain I'm in on any given day is currently being exacerbated by wearing a bra that is at least 2 times too small for my (apparently massive) tits.
So, until I can get/afford some nice, new, comfy bras, I shall be letting them hang free.
It's a shame the rest of the constant full body agony isn't as easy to deal with.
Have found a comfy spot where things hurt less than usual…and am going to have to give it up shortly to go be a working adult. Sigh.
#ChronicPain
FYI: I have, for the first time in about a week, the right combination of meds. However, the one I've been missing takes time to "build up" in my system.
In the meantime I have alternative tactics to try and survive. All are legal, but in moments like this I understand people who resort to the illegal methods.
You might've heard of the five stages of grief. This writer, who deals with #chronicpain and multiple operations over time that have confronted him with sources of new or worsened pain, explains the emotional stages he cycles through with each additional challenge. Turns out it's a survival mechanism. By Randall H. Duckett https://medium.com/wise-well/mope-cope-hope-the-three-stages-of-chronic-pain-6a1a81deebd2 ?sk=dea2839878b0bb29466fb5033d408496 #health #mentalhealth
Posted into Wise & Well @wise-well-robertroybritt
You might've heard of the five stages of grief. This writer, who deals with #chronicpain and multiple operations over time that have confronted him with sources of new or worsened pain, explains the emotional stages he cycles through with each additional challenge. Turns out it's a survival mechanism. By Randall H. Duckett
https://pubmed.ncbi.nlm.nih.gov/40193079/ Mindfulness vs Cognitive Behavioral Therapy for Chronic Low Back Pain Treated With Opioids: A Randomized Clinical Trial (Zgierska, et al, 2025) #cbt #cognitivebehavioraltherapy #chronicpain #painmanagement #mentalhealth
Note to self:
When gardening with Trigeminal Neuralgia, don't forget that chances are there's more dirt on your face than in the planters from rubbing mid spasms.
Look in a mirror before going to town! 
