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#cfs

29 posts11 participants3 posts today

(Australia-wide survey)
Are you someone who is experiencing, treating or caring for someone with ME/CFS and/or #LongCovid ?

"The Australian e-Health Research Centre at CSIRO ... is conducting a survey to understand the research priorities of the community"

Link:
csiro.qualtrics.com/jfe/form/S

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#PASC #PwLC #postcovid #postcovid19 #LC #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@auscovid19 #auscovid19

1/

Sympathetic US article.

vindy.com/life/lifestyles/2025

A bit too much focus on long vax for my liking as I suspect that is only a small proportion of ME/CFS & Long Covid. Plenty of people had long Covid in 2020 & 2021 before the Covid vaccines became available

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

Int J Mol Sci: “Advances in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), 2nd Edition”

The journal is inviting submissions for a special issue, with deadline of 20 May 2025. The guest editor is Dr. Vincent Lombardi.

mdpi.com/journal/ijms/special_

#MEcfs #CFS @mecfs

www.mdpi.comInternational Journal of Molecular SciencesInternational Journal of Molecular Sciences, an international, peer-reviewed Open Access journal.

StudyME is a free global participant registry proudly launched by Open Medicine Foundation for ME/CFS, Long COVID and related diseases

omf.ngo/studyme/

Image is from AMMES March 2025 e-newsletter

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC
@fibromyalgia
#Fibromyalgia #Fibro #FMS #FM