#Nirmatrelvir–ritonavir versus placebo–ritonavir in individuals with #longCOVID in the #USA (PAX LC): a double-blind, randomised, placebo-controlled, phase 2, decentralised trial, https://etidiohnew.blogspot.com/2025/04/nirmatrelvirritonavir-versus.html

I'm really glad I discovered contemplation and meditation before I got sick.

Shout out to St. John of the Cross, the desert fathers and mothers, and Thich Nhat Hanh. These folks have helped me be.

Spike Protein–Fibrinogen Interaction: A Novel Immune Evasion Strategy of SARS-CoV-2? https://pubs.acs.org/doi/10.1021/acsptsci.5c00122

The host protein fibrinogen has been found to interact with the N-terminal domain (NTD) of the spike protein in SARS-CoV-2. However, the evolutionary benefit of this binding to the virus still remains unclear. Herein, we put forward with rationale and supporting evidence that the binding of fibrinogen to its more conserved NTD is an immune evasion strategy adopted by the virus to outsmart the NTD targeted neutralizing antibodies.

Different patterns of persistent somatic symptoms after COVID-19 reported by the Dutch media and the general population

https://www.sciencedirect.com/science/article/pii/S0022399924002988

Screenshot from latest Science for ME weekly update

Hashtags:
@longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

"Federal judge says she will temporarily block billions in health funding cuts to states"

https://apnews.com/article/trump-covid-federal-money-lawsuit-restraining-order-hhs-4d534b9f04389161f71e3bc541e87d7a

"A federal judge will temporarily block President Donald Trump’s administration from cutting billions in federal dollars that support COVID-19 initiatives and public health projects throughout the country."

Detail from the last paragraph - this administration is now facing 150 lawsuits! Probably more on the way…

Virax Biolabs, UK:

Evaluation of T cell dysfunction in Post Acute Infection Syndromes [ME/CFS, long COVID, post treatment Lyme]

https://viraxbiolabs.com/wp-content/uploads/2025/03/WIRMposter_printing.pdf

Results of only 10 participants reported here but 150 are being studied

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #Lyme #LymeDisease

thelancet.com/journals/laninf/…

#Covid damage per hospitalization was 14% more from 2020 to 2022 compared with damage from the flu. These were the original and delta strains.

patientcareonline.com/view/lon…
nejm.org/doi/full/10.1056/NEJM…

However new data shows the Impacts of #omicron #LongCovid is just slightly less likely and damaging than #longflu

"Trump admin's attacks on chronic disease research abandons long COVID and ME/CFS patients... Again"

https://www.salon.com/2025/04/01/admins-on-chronic-disease-research-abandons-long-and-mecfs-patients-again/

"…an all-out assault on programs designed to help long COVID patients or research the condition."

"People with long COVID are also at an increased risk of developing ME/CFS. As one patient with ME/CFS and long COVID told Salon in 2023, the symptoms made her feel like she was in a 'living dead state' "

@mecfs

Reducing the Risk of #LongCOVID in Kids: Why Reinfection Matters and What We Can Do

h/t @alleburgers

https://johnsnowproject.org/primers/reducing-the-risk-of-long-covid-in-kids-why-reinfection-matters-and-what-we-can-do/

@whn

News from #MEAction - planning for #MillionsMissing 2025 (May 12)

"If you are interested in organizing a protest, gathering in a park as a community or making art, please join one of our protest organizing meetings on Thursday, April 10"

Meeting 1: Thursday, 4/10, 12pm PT/3pm ET
https://us06web.zoom.us/meeting/register/EHwZzzubSpqIi31vM1VRNQ#/registration

Meeting 2: Thursday, 4/10, 3pm PT/6pm ET
https://us06web.zoom.us/meeting/register/2hriH4c1RU6VbSGbEBrjHA#/registration

Details:
https://www.meaction.net/2025/04/02/millionsmissing-2025-sending-out-an-sos/

@mecfs

A huge amount of dissatisfaction and not much satisfaction regarding "NHS experience and specialist visits" from people with ME/CFS and to a slightly lesser extent people with long Covid in the UK

From:
https://bmjopen.bmj.com/content/15/4/e094658

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

"Besorgniserregende Daten von der RECOVER Kohorte. Auch bei Kindern und Jugendlichen verdoppelt sich das Risiko von #LongCovid bei einer 2. Infektion.
Prävention ist dringend notwendig!"

Danke für den heutigen Hinweis auf Bluesky und X, Frau Professorin Scheibenbogen! Deswegen setzen wir uns weiterhin für #Prävention durch Verbesserung der #Innenraumluftqualität ein.
#CleanAir4Kids: #ProtectTheKids

Link zu der Studie, auf die sich Carmen Scheibenbogen bezieht:
https://www.medrxiv.org/content/10.1101/2025.03.28.25324858v1

The UK Covid PCR map is out and national positivity has risen again to 4.2%.

The number of patients in hospital with covid, which was under 1,000 for most of February, has gone above 1,200 this week.

https://jamestindall.info/skeuomorphology/ladb_covid/index.html

1/9

Some days, it takes until mid-afternoon for me to realize that I am still crashed from over-exertion two days ago. I just realized that in 6 hours, I have so far succeeded at

1. Getting out of bed
2. Taking morning meds
3. Making coffee and breakfast
4. Eating and drinking same
5. Typing at the world
6. Watching the finches at the feeder

#LC #LongCovid #LivingWithLongCovid @longcovid
#spoonies #MECFS

Press release for UK study:
"Earlier diagnosis and better care needed for ME & Long COVID patients, report finds"

https://news.exeter.ac.uk/faculty-of-health-and-life-sciences/earlier-diagnosis-and-better-care-needed-for-me-and-long-covid-patients-report-finds/

"respondents reported significant delays in the diagnosis of ME & Long COVID, low satisfaction in specialist services"

@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME @longcovid
#LongCovid #PASC #PwLC #postcovid #postcovid19 #LC #Covidlonghaulers #PostCovidSyndrome #longhaulers #COVIDBrain #NeuroPASC

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